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Extended release oxycodone-long-term use?
Polymyalgia Rheumatica (PMR) | Last Active: Aug 14, 2022 | Replies (21)Comment receiving replies
Hi John,
Thank you for the quick reply. We went through several meeting with the doctor and the surgical team. They were aware of the prednisone my husband was taking and only had him stop the day of the surgery. Maybe there was a difference in the oral steroid vs. injection?
15mg of prednisone is the most he has taken and he hates even taking that dosage. The only other thing that has helped the pain of PMR has been Delta 8 gummies. Unfortunately, he can't take those and work. The gummies have enough TCH (hemp derived) to make him feel "high". The PMR pain is completely gone while on the gummy.
This has been a frustrating disease and our last visit to Vanderbilt a few weeks ago was disheartening. My husband is only 55 years old and a young 55!
Thanks again for your reply. I was just curious if others had taken any other course of action for pain relief.
Replies to "Hi John, Thank you for the quick reply. We went through several meeting with the doctor..."
Hi. I am new to the world of PMR and it's horrible....In the 90's I was diagnosed with chronic fatigue, fibromyalgia, Sjogren's disease, osteo arthritis and basically managed my pain with hydrocodone and tramadol with no side effects, and plaquenil. These meds kept me working in a very crazy busy all consuming career. In 2015 I was diagnosed with RA. We doubled the placquenil and added 3 mg. of prednisone because I got infections when we tried methotrexate. Things settled...I started having problems with my knees and eventually had to go on disability. Last year I went through a big downsizing and sold a house and moved to DE from DC area. They've was hard on me physically.and I noticed a big increase in my symptoms. Because of the issues with pain meds as my pain increased the meds did not change. I have tried oxycodone but.it makes me loopy so I prefer hydocodone which has no side effects for me. I started to have a new type of pain.in new places and eventually.I could not use my hands. I went to my new rheumatologist thinking it was RA but she thought PMR. So I was.put on 20 mg. of pred. Then had to start reducing. When I got to ten.things went south, but the focus seems to be on reduction of the pred. I am struggling to learn about how to manage. The thing I realized is I am not.functioning very well with this. It's very different than my other conditions. I am waiting for labs to see.sed rate etc. I am on 12.5 pred but my pain is bad. So I will go back up. I would think med decisions would be made on pain...no? So on what can help with pain for me was 800 motrin. It's not amazing but it has helped a bit...3 x day. If your husband can't take oxygen he might try hydrocodone instead. That has been the best for my knees. Since I have been on it since the 90's and my PMR pain was so bad I can't say what it could do for PMR.
.but I believe trying things is good. So way too much info there but I wanted to tell you about the meds...and see if anyone has advice for me on the decisions.on b reducing the dose...when and why. For 30 years I managed these conditions in a way to function. This is different....I am a bit lost. Any advice or info is welcome! Thank you for reading.this. take care
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PMR can be frustrating. I don't think anyone likes taking the prednisone but if you have PMR, it's the drug of choice and really gets rid of the pain. Both of my occurrences were started at 20 mg prednisone with the goal of tapering off slowly as the body allows. My rheumatologist had me keep a daily pain log along with the dosage of prednisone which helped me taper off. I generally did not taper to the next lower dose unless my aches and pains were tolerable. For me, that was on my scale of a 1 or 2. There were times when I had to bump up my dosage.
You might find the following discussions helpful:
-- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/
-- Prednisone tapering and remission: https://connect.mayoclinic.org/discussion/prednisone-tapering-and-remission/