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Discussion"The HUM", a persistent Low Frequency Noise
Hearing Loss | Last Active: Oct 23 6:07am | Replies (164)Comment receiving replies
Replies to "Hi Julie. Thanks for your reply -- I do appreciate it. To answer your question, my..."
Similar to @videojanitor: I have voice and music distortion after, up until now, being born with perfect pitch. Classical and jazz sound horrible to me and yes, I have hearing loss as well. No one has explained any of this to me since it popped up in 2018.
My tinnitus isn’t similar to others either: I hear music fragments, drumming, repeated rhythms, mush. It gets noisy about once/twice a week, then quieter (sometimes very quiet) on other days. In addition I have hyperacussis which eliminates going to gatherings of any kind over 5-6 people, restaurants, etc. All this has been a shocking life changer.
I appreciate reading what others hear and how they’re managing. Thank you!
It's really hard to have to apply the 'wait and see' approach when we want answers, but sometimes there aren't any.
I personally know a few people with Meniere's. They are always willing to share their experiences with others. They are not on MCC, but are members of HLAA (Hearing Loss Assn. of America). HLAA has chapters all over the country that bring people with hearing issues together to talk and learn. Do you know if there is a chapter in your area? I don't know where you live. If you want to, feel free to send me a personal message. If I know where you live, I might be able to connect you to someone who shares your experience. I live in Appleton Wisconsin. One of our chapter's board members lives with Menieres.
Just a thought that it might be helpful to meet someone online or in person who has the experiences you are having.