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@lweirdo1

Anyone know much about ARIKAYCE? They are pushing hard for me to start this but the side effects listed are pretty intense. Has this helped anyone with MAC that you know of??

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Replies to "Anyone know much about ARIKAYCE? They are pushing hard for me to start this but the..."

I am tolerating Arikayce well. I started it in March along with the Big 3. I had my first sputum sample done in mid May and it came back negative. I have MAC with cavitation. Have all the routine testing done.

Hello, I started the Aryikace 7/1/22 and its harder than I thought but so far manageable. I also take the 3 other strong antibiotics. I have MAC with a very large cavity, lots or nodules and cysts in to of several other lung issues and I am praying this will at least stop the MAC. I am to have my 1st sputum in August 2022 and pray its negative. I feel the meds will help most people of they can tolerate them as they disrupt your whole being. Good Bless us all and thank you for this forum.

@lweirdo1 I have been on Arikayce for a long time. I am grateful that the side effects are not horrid with the exception of a 1-900-CALL -ME voice which was only temporary. It is time consuming so one has to commit to it as equipment has to be sterilized after each use. It takes around 45 minutes. I think it is an effective drug if used with the Big 3 and airway clearance. @irene5