← Return to Remission: When do you consider yourself in remission from MAC?
DiscussionRemission: When do you consider yourself in remission from MAC?
MAC & Bronchiectasis | Last Active: Feb 13, 2023 | Replies (87)Comment receiving replies
Replies to "Anyone know much about ARIKAYCE? They are pushing hard for me to start this but the..."
Hello, I started the Aryikace 7/1/22 and its harder than I thought but so far manageable. I also take the 3 other strong antibiotics. I have MAC with a very large cavity, lots or nodules and cysts in to of several other lung issues and I am praying this will at least stop the MAC. I am to have my 1st sputum in August 2022 and pray its negative. I feel the meds will help most people of they can tolerate them as they disrupt your whole being. Good Bless us all and thank you for this forum.
@lweirdo1 I have been on Arikayce for a long time. I am grateful that the side effects are not horrid with the exception of a 1-900-CALL -ME voice which was only temporary. It is time consuming so one has to commit to it as equipment has to be sterilized after each use. It takes around 45 minutes. I think it is an effective drug if used with the Big 3 and airway clearance. @irene5
I am tolerating Arikayce well. I started it in March along with the Big 3. I had my first sputum sample done in mid May and it came back negative. I have MAC with cavitation. Have all the routine testing done.