Connect
← Return to GFR dropped 5 more points and I don't know why.
Discussion
GFR dropped 5 more points and I don't know why.
Kidney & Bladder | Last Active: Aug 31 9:03am | Replies (132)Comment receiving replies
You are so correct but I don't think any of these things are important to those very rich people. I do have an important question for all with CKD. I was speaking with my Cousin Carolyn who also has CKD-3. This is what her Nephrologist said to her (not verbatim): Keep eating the way that you are and watch your sodium intake. Really?? I have been avoiding magnesium, phosphorous, potassium (although I run low so I take supplements), caffeine, protein, etc. I'm not fanatical but I do watch the numbers. Who do you listen to?? I was shocked when she told me what he said. Am I being too diligent and missing out on some foods that I avoid? Any answers will be much appreciated. I already had CKD-3 in 2018 but the only way I found out was by reading my after visit summary. GP's need a course in kidney disease.
Replies to "You are so correct but I don't think any of these things are important to those..."
Connect
@nscappa When I barely tipped into Stage 3A, I changed my regular diet to a renal diet by researching online with National Kidney Foundation, American Kidney Foundation, and general research. All my doctors told me the same thing as your cousin has heard, "not to worry, you have a long ways to go before it will be a problem, and so on". I was shocked, surprised, and angry. My goal was to slow down progression of the CKD. At that time, it was presumed it was associated with my Systemic Lupus, and way back in 1999 a rheumatologist had alluded to that. It wasn't until 2014 when an nephrologist referred by my primary pushed for more information, and after a kidney biopsy we found out I have an ultra-rare autoimmune kidney disease! I have continued to follow a renal diet since then, and feel it kept my kidneys somewhat healthy until the disease played their part.
To answer your question, no, you are not being too diligent, in my humble opinion. Take charge of your health, advocate for what path you want to follow. If a person's CKD is due to a lifestyle or health issue that can be addressed, change it! Rely on reputable research [Mayo Clinic, Cleveland Clinic, either of the two kidney groups listed above, etc.], don't be afraid to take a stand for yourself!
Kidney disease seems to be downplayed by many primary care doctors. I have no simple answer for you why they do this! As kidney patients, we soon find out how much our kidneys do for our everyday health, when we see the information available.
Ginger