← Return to Long term Covid and Parsonage Turner Syndrome?

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@becky1024

Any symptoms are possible and real to a long hauler. We smell things that aren’t real or food tastes spoiled or rancid. I live in a 100 apartment high rise building and almost turned in the fire alarm recently because I swore I smelled paper burning somewhere in my apartment. It was real in my head but my brain was telling me something that didn’t exist.

Since your husband had Covid, it’s possible the pain in his shoulder that he intensely feels is just his brain imaging it but it’s very real to him. It took 25 days after getting Covid to lose my taste and 6 more days to lose my smell. After 2 months, he’s a long hauler to me. I’ve read where people suffer from their symptoms for almost 2 years, me, I’m at 4 months. All I can suggest is physical and mental therapy. Because of Neuropathy in my legs caused by my bad guys eating the Myelin coating off certain nerves in my legs, my legs are dead. Because of it, I must force my brain to make my legs to move just so I can walk with two canes. There are certain tests he could have done to see if the nerves in the shoulder area are still working. Like my legs, it shows the nerve that allows a signal to make your muscles movements. My pain nerve is completely dead but the nerve for muscle movements is still working . So I had to go to physical therapy and force my brain to move my legs. His pain is vividly real to him but if the nerve for muscle movements is damaged or pinched. This test done by a neurologist will be able to detect how that nerve is or isn’t working correctly. If I’m lying down, I can barely lift my leg up off the bed. This has been going on since 2019. Hope the best for your husband.

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Replies to "Any symptoms are possible and real to a long hauler. We smell things that aren’t real..."

My coworker’s mom has experienced your same issue post Covid. My coworker tells me how her mom is always throwing away food because it smells rancid. It’s amazing how Covid can also have a psychological affect. I had not thought that perhaps my husband’s issue can be neurological. He has an EMG test scheduled for his shoulder end of this month, let’s see if the test shows any damage to his nerve. I just hope we are able to get to the bottom of it and hopefully he will regain all or at least most of his mobility in his arm. Best of luck to you.