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Want to talk with others. Have you found relief from CRPS?

Chronic Pain | Last Active: Jul 10 6:30am | Replies (235)
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@drorvick

Hi, I have found relief with retraining the brain with positivity. There are many great books on how to do this. I have also used Ketamine Infusions. They are rarely covered by insurance and are real expensive. These are only tools and are not cures. I have CRPS II almost full body. There are a 2 face book groups with positivity. Stay away from the negative groups. Positivity with CRPS/RSD.Org is a great group. Another one is P neuropathy success stories. Other neuropathy groups are negative and tend to make me feel worse yet compassionate towards the person suffering. Not allowed to post any other groups to those sites. I hope you find the positive groups. You will find so much help. your friend, Doreen

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Replies to "Hi, I have found relief with retraining the brain with positivity. There are many great books..."
Rachel, Volunteer Mentor | @rwinney | Jul 21, 2022

@drorvick Hello Doreen, thank you so much for posting about your experience in managing CPRS II and providing helpful, hopeful tools. I'm sure many members are grateful for your information.

The 2 Facebook groups you're involved in sound inspirational. I'd like to introduce you to Darryl, @drg24242 who also suffers from CPRS and is going through a difficult time. He may benefit from these groups.

I admire that you work on retraining your brain with positivity. I've had more success managing my chronic symptoms since doing the same. I've found that sticking to new routines and beliefs such as positive self-talk, daily stretching, mild cardio (walking or riding a recumbent bike), and low impact weights and resistant bands, even when I didn't feel like it, was eventually game changing. It has allowed me to rewire my brain.

Neuroplasticity is amazing, isn't it. We so often forget because we're consumed by our pain and allow it to overrule us, that we possess the most powerful tool inside of our head. Our brain is a computer and definitely can be rewired.

Doreen, how do you handle difficult days? What is your best advice to get through them?

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