Haha! Lord no! Twenty years AGO! Haha

I will watch it. My doctor did refer me to the Pain Clinic. (I’m with Kaiser.)

They said, we’d like you to start CBT. Yes, I said, I’m familiar with that. Let’s give it a shot.

Well, it’s in group sessions only, oh, and virtual, and available on the two days from 10-12:30, or these two days from 3:30-6.

I say, I work from 12:30-6:30.

She says, can you work at 12:30?

1) No. 2) Nor can I magically appear somewhere immediately after finishing a virtual group.

I asked if the “Pain Clinic” also offers any Physical treatments—physical therapy, trigger point therapy, chiropractic? She says I will have to make an appointment with the clinical psychologist. They’ll let me know when that’s available. Haha.

I have tried muscle relaxers in the past. Magnesium, potassium, I do stretch— I pretty much have to. I’m currently going off the Gaba because it doesn’t help at a low dose and the Neuro doesn’t “discuss” with me (via e-message), he just tells me to take more. Not, “try taking 300mg more at night,” just “try taking more.” Grr..

Additionally, I was recently diagnosed with ADHD (formally. I’ve known for decades! Haha) That doc prescribed Wellbutrin. After about a month I messaged that I felt good on Wellbutrin, but not any different than any time feeling good Without Wellbutrin, and it Definitely did not help with ADHD symptoms.

Turns out directly after seeing me once (virtually of course,) my doctor left Kaiser. That was probably three months ago and they’re still waiting for a replacement doctor. I called and asked “Was that the Only psychiatrist in Kaiser? Can’t I just get a different doctor?” Meanwhile, they prescribed my adderall, of which I take the smallest dose once a day. It doesn’t help either, and, in fact, I suspect it makes my pain worse. After I get off the Gabapentin, I’m going to get off the adderall. (I don’t want to quit everything at once and this is literally only going to be a two week process since I take so little of each.) When I tell the docs they say, “Okay.”

Anyway, I’m rambling on now, but am interested in anyone else having these terrible, constant cramps.

Thanks all! 🙂

PS-I’m not “down and out”. The facts may suck, but it’s just what it is. 🙂

Thank you so much for this video. I am suffering too from Chronic pain and was on reading some posts, I have just started with the leg pains and cramps and my MRI ‘s do not show issues that could cause this even though I have had multiple back surgeries. I so appreciate everyone sharing their journeys …lfisher66 I am sorry this is happening to you as well. I too was super active, Pilates , trainer, roller blading, nothing now…
Will be watching your video in a few hours at length , thank you again. I am seeing so many Doctors and no answers yet.

I want to thank you for your post. I have had FM for 40 years - perhaps longer. My family is the worst in understanding chronic VS acute. All of what you and @lfisher66. said has been me. There were days I was in so much pain and many times it would be totally in a different place. I've had all medications and the side effects to the point where my vision was going. The worst was being told I needed antidepressants. I have never been depressed, even with pain and the side effects were vicious. I am frightened of taking pain killers because of addiction but my wonderful rheumatologist understands. I loved the video, Here is a doctor who does understand the pushing and crashing. When one gets so few good days you want to do as much as possible when you feel better. The cramps are the worst. My whole foot cramped one night and I could not stretch it or rub it, nothing but try to walk. My physiotherapist told me to try a ball under my foot, fantastic. That is all it is, try different things to get past the pain. Thanks for that video and best to @lfisher66.