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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)
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@sophiarose

Sorry I have been diagnosed with metastasized liver NETs don’t know where the primary is as of yet

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Replies to "Sorry I have been diagnosed with metastasized liver NETs don’t know where the primary is as..."
Teresa, Volunteer Mentor | @hopeful33250 | Jul 17, 2022

Hello @sophiarose

Personally, I have never taken either octreotide or lanreotide so I do not know the difference between the two. I understand that one is easier to inject than the other. Here is an article from the National Library of Medicine about the two different medications, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6643159/. I hope some of our members who have used these meds will be able to answer this question for you. Also, this might be a good question to ask the NETs support group on the first Thursday of each month.

The fact that the primary NET is unknown is a common problem. Have you had a Gallium 68 scan to try to determine where the primary is located?

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