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← Return to Remission: When do you consider yourself in remission from MAC?
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Remission: When do you consider yourself in remission from MAC?
MAC & Bronchiectasis | Last Active: Feb 13, 2023 | Replies (87)Comment receiving replies
Interestingly, I recently had a negative bronch. I can’t tell you all how thrilled I was with that news. My lung doctor was surprised. A CT scan was done, and unfortunately things weren’t so great. I hesitate to say that out loud as I am a positive person. The reason I had a negative bronch is because it is in the parenchyma ( the meat) of my lungs. I am having robotic surgery in August. So I guess we have to be careful with thinking we are good when we may not be good at all. My thought is that a CT scan is more revealing than a bronch which may not grow MAC and show a negative result giving a person a false sense of wellness. I will say “ignorance is bliss.” Knowing what I know now about what is going in my lungs is keeping me up at night. @irene5
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Hello Irene! It's been awhile..... You bring up a very good subject: One thinking they are well, when, in fact, they are not. I have been going to Mayo Clinic since 2013, and tested negative for MAC since 2014. All chest x-rays and CT's showed little change over the years and then Blam! I am told that I have two colonies of MAI MAC and aspergillus, and....need a lung transplant soon! Up until Dec 2021; I thought I was holding my own and staying steady. Actually, my lung function was steadily deteriorating. I don't know if there is any correlation, but I was taken off of my Tobramycin in Dec 2021, but kept on the cipro every other month..(and now have tested pos for MAI) A dr recently told me that since I had been on cipro for 9 years; I am most likely resistant to it by now. So, I have been unprotected by prophylactic antibiotics for six months now. I have a Zoom meeting with my I.D. this Tues, so I will see what she recommends.