Hi,
Middle of night here. 5 months ago, I had the correct surgery for cauda equina symtoms
L4-5 disc herniation, laminectomy, decompression, spacer, fusion. Right now having the same symtoms, pain with peeing, pain rectally ...usually have to use a biscodyl suppository to iniate poop. The pain is so bad ...it is unexplainable. I went to a clinic to get this done, thought it was good, cause for 5 years the pain was insane but no one would listen to me. Right now they aren't
listening, limiting the amount of pain medication treat me like a criminal looking for drugs. Until last year August was never on pain meds. Just kept getting worse...till I found this Clinic, the Nuerosurgeon I thought understood ...but now not listening...surgery turned out great. The pain and bladder & bowel, legs, feet are all still the same, if not seemingly worse. The problem I have is no one understands this problem and how bad the pain is. I've tried going everywhere, 3 medical universities, 10 colorectal surgeons, 2 urogynecologists...I thought finally I found the answer, as it seemed like he knew, but now seems like he could care less. Yesterday, had an EMG done by the supposed pain management Doctor...he was worse , not listening taking the flexeril away ...I'm rather stuck between a hard rock & reality. Who or where in my area of Southern California does
understand and will listen. Not even enough meds to get me through the month. Today I'm going back to one NP who knew and knows what's going on here. Guess I just answered what I was asking, lol. She is also only allowed so much she can prescribe ...but now 5 months post surgery I'm sure she will understand. She also referred me to a good Radiologist Interventionist, he does epidurals, probably my next step. So I hope this made sense, & if anyone out there knows , seen,
have done, has someone who understands please text ...this is totally horrid and my poor family is suffering too. TIA & God Bless you, hope no one ever goes through this!! Thank you 4 reading.