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POEM Surgery for Achalasia

Digestive Health | Last Active: Apr 15, 2023 | Replies (105)

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@hopeful33250

Hello @denisepowell and welcome to Connect. I am sorry to hear that your POEM surgery was difficult.

If you are comfortable doing so, could you please share more about the problems you were having prior to the surgery? Were you diagnosed with Zenker's diverticulum or something else?

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Replies to "Hello @denisepowell and welcome to Connect. I am sorry to hear that your POEM surgery was..."

I went to my Gastroenterologist after having very bad swallowing issues she did a Gastroscopy and a Motility Test which disclosed that the nerves/muscles were no longer working. She then arranged for me to see a colleague who then did four Gastroscopies and four Anaesethics, three using a balloon of 20mm, 30mm and 40mm dilations and then had another Motility Test which showed a diagnosis of Achalasia which could be caused by a viral infection or autoimmune.
The tablet Motilium which is used to help this condition has Sulphur in it which I am allergic to.
In the meantime I have had a few trips to hospital as the blockages in the aesophagus were being pushed back into the lungs with some really terrible results.
I was then sent to a surgeon who operates with the POEM procedure who informed me that I have Achalasia Type 2 and that with Type 2 the Dilations were never going to work.
I thought I felt comfortable with this surgeon so he operated. The time after the surgery is not very pleasant either especially after you get a nurse who notices that the date on my pain patch written by another nurse earlier is out of date and just rips it off my arm without finding whether I have a new one and not caring.
Unfortunately the operation was unsuccessful so now I am just living from day to day. Life goes n!