← Return to POEM Surgery for Achalasia
Discussion
Digestive Health | Last Active: Apr 15, 2023 | Replies (105)
Comment receiving replies
Replies to "Hello @denisepowell and welcome to Connect. I am sorry to hear that your POEM surgery was..."
I went to my Gastroenterologist after having very bad swallowing issues she did a Gastroscopy and a Motility Test which disclosed that the nerves/muscles were no longer working. She then arranged for me to see a colleague who then did four Gastroscopies and four Anaesethics, three using a balloon of 20mm, 30mm and 40mm dilations and then had another Motility Test which showed a diagnosis of Achalasia which could be caused by a viral infection or autoimmune.
The tablet Motilium which is used to help this condition has Sulphur in it which I am allergic to.
In the meantime I have had a few trips to hospital as the blockages in the aesophagus were being pushed back into the lungs with some really terrible results.
I was then sent to a surgeon who operates with the POEM procedure who informed me that I have Achalasia Type 2 and that with Type 2 the Dilations were never going to work.
I thought I felt comfortable with this surgeon so he operated. The time after the surgery is not very pleasant either especially after you get a nurse who notices that the date on my pain patch written by another nurse earlier is out of date and just rips it off my arm without finding whether I have a new one and not caring.
Unfortunately the operation was unsuccessful so now I am just living from day to day. Life goes n!