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Need hope: Neuropathy from chemo

Cancer: Managing Symptoms | Last Active: Sep 29 8:27am | Replies (151)

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@tessie63

Thank you for reading my story and your understanding reply. I have a top grade walker and I’ve named him Charlie. I do get out with it thanks to my daughter. She lives not far from me and takes me shopping now and then. I also live in a lovely condo which I bought after my husband had a stroke. I knew it was time to move. The stroke affected his memory and now he has dementia. We’re doing fine though. I am his memory and he is my feet. It was our 54th wedding anniversary on the 29th of June. He had no memory of it so we enjoyed looking at our pictures together and me talking about them. As long as I can care for him I will. We both love living here and the people here are beautiful, kind souls. All in all I have a great life. I would just like to know if there are others out there with my feet issues and what they have done differently to improve things.
What is your story now? I would love to hear about you
and how you are doing now.

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Replies to "Thank you for reading my story and your understanding reply. I have a top grade walker..."

I’m so moved by your tender story of love and life with your husband of 54 years. That’s a huge milestone in itself with so many memories of decades spent together. “I am his memory and he is my feet.” This is a beautiful line and reflective of what has made your marriage so successful. It wasn’t always one of ‘memory and walking’, but I’m sure you both always had each other’s back and together ‘made a whole person’ as my husband and I say. ☺️
It’s wonderful that you are living in a setting that works perfectly for both of you. It’s important to feel safe, secure and part of a community. I know you mentioned having a pity party sometimes…go for it! The difference is, you know not to stay too long at that party. 😉
I read a few of your previous posts to see that you’ve gotten introduced to a number of fellow neuropathy members. Sadly, it’s a pretty hot topic in the forum but it lets you know you’re not alone…not that it makes you feel better but sometimes misery loves company. (I really don’t know what that means! My mom always used to say that!

Thank you for asking about my story. In a nutshell, 3 years ago, I was diagnosed with Acute Myeloid Leukemia after being seriously ill for 3 weeks. Many rounds of chemo and a bone marrow transplant at Mayo-Rochester and I’m back to normal…in remission and things look promising! It was an arduous journey but well worth the effort. I’m happy to just be alive every day and I feel it’s my mission to help give hope and encouragement to other members diagnosed with blood cancers and/or facing a bone marrow transplant. ☺️ My husband and I just celebrated our 48th anniversary…we never really know where our life journey will take us but it is very special when it’s spent with someone we love. I wish you and your husband all the best.

I am HERE for your walker named Charlie and the above-mentioned 'pity party'! 🙂 Thank you for sharing your story with us. I think it is a beautiful example of what a post-cancer life looks like: pity, despair, crying, laughing, feeling grateful and then feeling angry. All of the feelings, all of the time, or seemingly 'out of the blue.' As for your feet issues, I think other recommendations made here are worth looking into. I'm not able to offer much since my neuropathies are mostly in my toes and they are slowly (SLOWLY) becoming less irritable. I wish you and your husband all the best.