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Need hope: Neuropathy from chemo
Cancer: Managing Symptoms | Last Active: Sep 29 8:27am | Replies (151)Comment receiving replies
Tessie63
I had ovarian cancer. My oncologist worked for six hours to remove the damage it had done along with two other surgeons. It crawled over everything. I had one and half feet taken off the colon and my bladder with all the scrapping they did needed surgery to fix the holes in it. I had to wait a little over one year to get this fixed because of Covid here. The sad thing here though is that I had a cyst on that ovary and my regular doctor and myself
followed it until I saw a gynaecologist who told us both not to worry about it because it would never amount to anything. I wanted the doctor to remove this ovary but she refused and told my doctor not to follow it with the ultra sound tests any more and so this is where I am today. My meds are 2 caps twice a day of Lyrica or pregabalin and 4 caps at bedtime of of nortriptyline.
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That’s one of those sad stories where your gut says one thing but your gynecologist says another and completely missed the gravity of the situation! I’m so sorry that your cancer wasn’t found sooner to avoid the metastasizing.
It is a positive sign to hear your oncologist was very diligent in making sure there were no remaining areas of cancer, that you only had to followup with 3 chemo treatments and are still in remission. Ovarian cancer isn’t a easy one to beat so I’m really happy for you that you’re still here! I know it’s not the life you’re used to and with the neurology it’s not 100% an easy time, but you ARE here and you have a life, which to me is the ultimate gift. You have more time with family & friends, more time to enjoy beautiful moments in nature, reading, maybe some small artistic activities.
With your walker are you able to get outside to do a little walking around in the sunshine? Does your walker have a seat on it so that you can walk and then rest for a couple minutes?
I needed a walker for awhile when I lost feeling from my waist to my toes due inflammation on my spinal cord. I can sure empathize with you that the walker was a challenge and annoying, but it gave me freedom to still be moving on my own accords…in spite of the silly tennis balls on the legs! 🙃
What are some of the things you do enjoy doing during the day? Are you able to meet with a friend for lunch? Go shopping? Do you have any hobbies?