← Return to Small Fiber Neuropathy discouraged

Discussion

Small Fiber Neuropathy discouraged

Neuropathy | Last Active: Apr 13, 2023 | Replies (124)
Comment receiving replies
@graysea

I was referred to an endocrinologist. I will see him at the end of the month. Initially, when I was prescribed prednisone 40mg, I slept very little. My thoughts were blurred. I got no pain relief. Withdrawal has been a struggle. The second month I aquired tittintus from the withdrawal .It was suspected that it eas caused by a cortisol flux.
I will see if he orders more blood work. Very sad that I have had to struggle. The tapor should have started when they ruled out the disease. But it didn't. They got "busy". I just have to forgive. I guess when a person is going through hell, dont stop, keep going. I get out sooner or later. I wish I wasn't a victim of an office being "busy"

Jump to this post

Replies to "I was referred to an endocrinologist. I will see him at the end of the month...."
graysea | @graysea | Jul 28, 2022

I saw my endocrinology doctor. I have seen him onging, before I was
diagnosed small fiber neuropathy, for thyroid issues. My small fiber
neuropathy was caused by a discontinuation of a medication and not
pre-diabetes as far we can tell. I was being assessed for prednisone
withdrawal.

He ordered a myriad of blood tests. He is keeping me on 6.5 mg of
prednisone. In order to do accurate cortisol tests I would have to go off
of prednisone, which is not recommended. Also, the high dose prednisone
was masking adverse side effects of gabapentin. This being dizziness,
nausea, and overall low quality of life. Gabapentin was a page of hell for
me. As I have said previously, I had severe side effects. Then it was
represcibed, only to have those side effects again. Because of the severity
of Gabapentin side effects, Lyrica is not recommended. I will stay on 6.5
mg of prednisone until gabapentin is tapored. Other pain treatments will be
started, then more taporing of prednisone. I still only sleep between four
to five hours a night.

I walk a mile a day, do breathing exercises, and am on a low carb diet. I
pray.

I need encouragement.

Im discouraged.

VIEW AND REPLY