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Should 4+ Pseudomonas be treated?
MAC & Bronchiectasis | Last Active: Jun 24 7:41am | Replies (115)Comment receiving replies
fdixon63
The description of your experience with pseudomonas aeruginosa could have been written by me, it is so similar. I currently am pseudomonas +4.
I have had levofloxacin many times in the last 9 years. It’s not so effective anymore. Also had nebulized Tobi - usually 14 days on 14 days off - cycle repeated January thru May, this year.
My pulmonologist says I probably always have pseudomonas going on. But I don’t have to restart Tobi unless symptoms worsen. It’s in my sinuses too, and ENT is going to treat that with an antibiotic nasal rinse. I always have a cough with mucus production going on. Pulmonary vest, nebulized 7% saline, nasal rinse with saline and budesonide, 2x daily. Any antibiotics are on top of that.
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The post I last did on this particular topic was two years ago. I've done other posting with other's posting. So I'll respond with an update of where I am now. I changed pulm docs a year ago and at that time my last doc had me on a 28 day Tobi and Levofloxin (2 weeks). My pseudo--most likely--was surpressed and I did well asymptomatically for a year. A couple of months ago my sputum began to be darker. I was doing twice a day--vest and 7% SC. The newer doc said to go to 3X a day and ordered 3.5 hypersal. After a period of 2-3 weeks it was decided to go to Tobi for two weeks. He never ordered any oral antibiotic. I'm on day 10 of Tobi. Feel good about how I'm getting up more medium yellow colored sputum. My question is if I'm still coughing up that kind of sputum at the end of two weeks, what can I expect him to do? Since you had five months of this 2 on and 2 off, what did you experience? Were you still coughing up colored sputum? It seems to me if after two weeks I'm still coughing up this darker sputum I should continue the Tobi till it is clear or very light yellow. Would appreciate your comments on that. Also I never heard of pseudo in the sinuses. Do you have what you blow out tested?
Thanks much.