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Small Fiber Neuropathy discouraged

Neuropathy | Last Active: Apr 13, 2023 | Replies (124)

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@johnbishop

Hi @graysea, You mentioned the tapering off prednisone was causing some anxiety in another discussion. Has your doctor done any blood tests to check your cortisol level? It might be something that explains how you are feeling when you are trying to taper off of prednisone.

Here's some information that explains what might be happening...
"How Long Will Withdrawal Symptoms Last?
It’s normal to feel some mild symptoms for about a week or two as you taper off prednisone. Don’t take any OTC pain medicine or prescription drugs without asking your doctor first.

Psychological withdrawal symptoms could last for 2 to 8 weeks. The doctor may give you blood tests to check your cortisol levels as you taper off prednisone. You may need to taper off more slowly or go back to your regular dose if you have severe symptoms."
-- Prednisone: What to Know About Withdrawal Symptoms: https://www.webmd.com/drug-medication/prednisone-taper

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Replies to "Hi @graysea, You mentioned the tapering off prednisone was causing some anxiety in another discussion. Has..."

I was referred to an endocrinologist. I will see him at the end of the month. Initially, when I was prescribed prednisone 40mg, I slept very little. My thoughts were blurred. I got no pain relief. Withdrawal has been a struggle. The second month I aquired tittintus from the withdrawal .It was suspected that it eas caused by a cortisol flux.
I will see if he orders more blood work. Very sad that I have had to struggle. The tapor should have started when they ruled out the disease. But it didn't. They got "busy". I just have to forgive. I guess when a person is going through hell, dont stop, keep going. I get out sooner or later. I wish I wasn't a victim of an office being "busy"