You sound a bit like me. I tried methotrexate and threw up everyday. Leflunomide caused a horrible rash that itched so bad I couldn’t stand it. Lasted six weeks. Started Actemra a month ago. My second infusion is next week. No difference yet, but have been told it may take 2-3 months.
I am only taking 2 mg of prednisone per day. It does nothing to help, but I don’t want to go up as I have been on it for 4 years.
Also dealing with long Covid after a break through infection a year ago. No sense of smell. Exacerbated fatigue and other strange things happening to my body.
So tired of this. Some people look at me and say “you don’t look sick”. They can’t see the invisible pain and fatigue inside.
So afraid this is my future life.