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@rwinney

Good to hear that you're actively pursuing diagnosis with reputable facilities. I remember what it's like to live in that world of uncertainty. Keep persevering, you'll get there, hopefully sooner than later with a plan for relief.

If time keeps ticking and you don't get firm answers, keep PRC in mind.

I'm curious how your final blood patch will turn out. My fingers are crossed. Do you mind keeping me posted?

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Replies to "Good to hear that you're actively pursuing diagnosis with reputable facilities. I remember what it's like..."

What is PRC? I started this journey 6 years ago and there is nothing left for me to try except the blood patches. There is a Danish doctor at Cedar Sinai who sews up the holes if they are, in fact there. I could never make that trip. My friend tried Mayo in Florida with no luck. I don't think they know how to help us. I have migraine with aura but New Daily Persistent Headache is what keeps me on the couch every day. Now my toes are getting numb from this sedentary life. It all sucks. Yes, I will keep you posted. Thanks for caring.