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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 18 hours ago | Replies (7067)

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@rwinney

@mikayla1 Hey, Mikayla - I'm sorry to hear Emgality hasn't helped you, that's very unfortunate because it does help some people. Eventually, none of the migraine meds helped me either. I took me a while to figure out that I had central sensitization syndrome. The fact that you have dizziness from the meds, makes me wonder if you have central sensitization. A few things to consider:

1. Are treatments are no longer working?
2. Is deconditioning setting in?
3. Are you in emotional distress?

I may have discussed CSS with you before, forgive me, I don't recall. Anyhow, I feel awful when folks are suffering and there may be options by thinking outside of the box. Have you considered Mayo Pain Rehab Center? A lot of migraine sufferers find help there.

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Replies to "@mikayla1 Hey, Mikayla - I'm sorry to hear Emgality hasn't helped you, that's very unfortunate because..."

None of the treatments ever worked. I treat at Jefferson Headache Center in Philadelphia. I just had my 5th blood patch. Getting another one soon for a diagnosis. Might be blood leaking into my veins in my spine. A doctor from Johns Hopkins has done 3 of my blood patches at Jefferson. He is going back to Johns Hopkins soon so I have to move on this. I am absolutely miserable for 3 years every single day. Thanks for the tips. I'll check it out.