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DiscussionDiagnosed with moderate/severe poly neuropathy: sensory motor
Neuropathy | Last Active: Mar 10, 2023 | Replies (45)Comment receiving replies
Replies to "Thank you for sharing. I am young & had a bad car accident damaging my cervical..."
mhuddy4 - The braces are a prescription. I was in PT at the time. My physical therapist felt that the AFO's would be helpful, he contacted my primary for a prescription and I took it to the company that sells them, got fitted and my insurance did pay for the cost. The company I dealt with actually fits patients with prosthetics and orthotics. If you google walk-on flex ottobock, you will see what I am wearing. The back part does flex backwards to a degree. First week or two, wore them a few hours a day. Oh yea, felt a little weird. Each week added an hour. I now wear them from time I get up until I go to bed. I am not in the medical field. I am only providing info on what works for me with my type of neuropathy. You have a lot of issues for sure. But, if you go to or return to PT, I would start with my phys therapist, they will know what is best for you based on your individual issues.
Wish you the best! Ed
Hello @mhuddy4, Welcome to Connect. I know it must be terribly difficult to deal with everything you are going through right now. You mentioned getting Rhabdomyolysis. There is a discussion on the topic that might provide some help from other members with similar symptoms.
-- Rhabdomyolysis - Long-Term Recovery & Chronic Pain: https://connect.mayoclinic.org/discussion/rhabdomyolysis-long-term-recovery-chronic-pain/
You also mentioned being off balance and limping and having hip/pelvis surgery which the doctor mentioned it was shorter now. @sueinmn mentioned gait training helped her in this post in another discussion here - https://connect.mayoclinic.org/comment/635851/. Another discussion related might also help -- Balance & Gait Problems: A Real Puzzler: https://connect.mayoclinic.org/discussion/balance-gait-problems-a-real-puzzler/
I know PT can be difficult when you are struggling. It sounds like PT may help. Have you discussed PT with your doctor or care team?