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Ankylosing spondylitis: anyone else?
Spine Health | Last Active: Dec 1, 2024 | Replies (82)Comment receiving replies
hello and thanks for the response.
i'm currently in occupational therapy because i have mobility and balance problems due to this and also autism.
i have kyphosis and my head and feet are both leaning to the right, making my body kind of C-shaped.
for my veins, i really didn't receive an answer. and for my face they gave me B complex injections every two weeks.
honestly i'm just a student and can't really afford a better doctor.
my hands don't swell. they just hurt usually but so do all other bones in my body. i write all day despite the pain, so i'd say they're functionally okay, too. but the veins hurt uniquely on my hands and it feels like some sort of vasculitis? like they are on fire?
thank you again.
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Hey @dexkillz, how are you doing? I just thought I'd say hello and introduce myself. I don't have any experience with ankylosing spondylitis, but I was drawn to your comment about feeling like your bones are being crushed, and remarks about burning skin sensations. I have felt like that in similar ways from having small fiber neuropathy and central sensitization syndrome, and it made me empathize with you.
You are the same age as my daughter who is also a student and writing ALL the time so that hit home for me as well. I can't even imagine. I give you all the credit in the world for persevering through your work regardless of your pain and challenges. Props to you! You should be very proud of yourself. If or when you're feeling up to it, I'm wondering how OT is going for you and what ways you've learned to manage easier so far?
Have you had a chance to look through the ankylosing spondylitis thread yet and connect with anyone?