← Return to Ankylosing spondylitis: anyone else?
DiscussionAnkylosing spondylitis: anyone else?
Spine Health | Last Active: Dec 1 11:25am | Replies (82)Comment receiving replies
Replies to "hello and thanks for the response. i'm currently in occupational therapy because i have mobility and..."
Hey @dexkillz, how are you doing? I just thought I'd say hello and introduce myself. I don't have any experience with ankylosing spondylitis, but I was drawn to your comment about feeling like your bones are being crushed, and remarks about burning skin sensations. I have felt like that in similar ways from having small fiber neuropathy and central sensitization syndrome, and it made me empathize with you.
You are the same age as my daughter who is also a student and writing ALL the time so that hit home for me as well. I can't even imagine. I give you all the credit in the world for persevering through your work regardless of your pain and challenges. Props to you! You should be very proud of yourself. If or when you're feeling up to it, I'm wondering how OT is going for you and what ways you've learned to manage easier so far?
Have you had a chance to look through the ankylosing spondylitis thread yet and connect with anyone?