1. < Neuropathy

Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

jchet | @jchet | Jul 11, 2022
In reply to @dp33 "@jchet What has worked so far - and I think I am only starting on this..." + (show)
@dp33

@jchet
What has worked so far - and I think I am only starting on this journey of discovery

I have given up alcohol and caffeine, increased exercise always doing something leg related (walk for an hour, or exercycle).
Supplements.
Alpha-Lipoic Acid 1200mg
Vitamin E
Vitamin B Complex
Magnesium/Calcium
Omega 3 fatty Acid
Vitamin D
Folic Acid
Tumeric
Going to add N-Acetylcysteine

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I think alpha Lipoic acid may help only if you have diabetic neuropathy……might want to check on that.

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jchet | @jchet | Jul 11, 2022
In reply to @pacer3702 "A note of caution about the B complex: long-term use of vitamin B6 supplements can cause..." + (show)
@pacer3702

A note of caution about the B complex: long-term use of vitamin B6 supplements can cause peripheral neuropathy.

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Really? Where did you hear or read that? Just curious…..never heard that before.🤔

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1 reply
jchet | @jchet | Jul 11, 2022
In reply to @raebaby "I have never heard of MFR. I'm going to research it. Thanks!" + (show)
@raebaby

I have never heard of MFR. I'm going to research it. Thanks!

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Has anyone ever had relief from the numbness by taking CBD oil with THC?

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1 reply
jchet | @jchet | Jul 11, 2022
In reply to @arcticmark "Have extreme fatigue but just below what I can ignore so feel exhausted every day but..." + (show)
@arcticmark

Have extreme fatigue but just below what I can ignore so feel exhausted every day but don't work to change just that.

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Do you have non-diabetic peripheral neuropathy with numbness?

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jchet | @jchet | Jul 11, 2022
In reply to @materk "I have non diabetic and non Chemo Neuropathy .Likewise my Father, mybrother and his son. Condition..." + (show)
@materk

I have non
diabetic and non Chemo Neuropathy .Likewise my Father, mybrother and his son. Condition extends through feet up past my knees. Also in right hand. Starting about 6 years ago and continues to progress. I have very little pain so far. I take a wide variety of Shaklee Food Supplements .No medications .

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What is in the Shaklee supplements?

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jenatsky | @jenatsky | Jul 11, 2022
In reply to @mcd123 "My next question is who detetmines the dosages. If you have never taken the medication before..." + (show)
@mcd123

My next question is who detetmines the dosages. If you have never taken the medication before how can you determine your own dosage.

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The prior responder is correct. The doctor ordering the compounded drug must specify what they want unless the doctor has a predetermined compounded mixture they order frequently. Be cautious about why the doctor feels you cannot be treated with standard medication already available and what kind of proof can they offer showing the benefits of this compounded medication? It might cost you or your insurance a lot of money too.

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Mentor
John, Volunteer Mentor | @johnbishop | Jul 11, 2022
In reply to @jchet "Really? Where did you hear or read that? Just curious…..never heard that before.🤔" + (show)
@jchet

Really? Where did you hear or read that? Just curious…..never heard that before.🤔

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Here's some info on B6 and neuropathy...

-- B6 section it explains -- too much or too little gives neuropathy:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/
-- NIH - Nutritional Neuropathies:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/
-- Vitamin B6 Toxicity:
http://www.easy-immune-health.com/vitamin-b6-toxicity.html
-- B Vitamins for Neuropathy and Neuropathic Pain:
https://www.omicsonline.org/open-access/b-vitamins-for-neuropathy-and-neuropathic-pain-2376-1318-1000161.php?aid=90896

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1 reply
raebaby | @raebaby | Jul 11, 2022
In reply to @jchet "Has anyone ever had relief from the numbness by taking CBD oil with THC?" + (show)
@jchet

Has anyone ever had relief from the numbness by taking CBD oil with THC?

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I have both but haven't tried them together.

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1 reply
jchet | @jchet | Jul 11, 2022
In reply to @raebaby "I have both but haven't tried them together." + (show)
@raebaby

I have both but haven't tried them together.

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Does one or the other help with swelling?

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raebaby | @raebaby | Jul 11, 2022

I don't think so. I like CBD to help me sleep.

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