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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: 2 days ago | Replies (1024)

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@sickofbeinsick1

I TOTALLY get that! I’m 5’ 2” , I weigh 130, I have to wear maternity underwear. As far as “clothes”, I wear mostly moo moos “sundresses” or anything like that. I can’t wear anything snug at all. If I put on shorts or anything that meets my middle section “waist”, within a matter of minutes, I HAVE to take them off because it starts my stomach pain. I know it sucks!
It’s quite frustrating, especially if I’d like to go out & look decent. It has to be a dress….God forbid go out to eat. My GI for 8 years had me on a trial & error diet…in retrospect, I should have gone elsewhere. But she’d tell me stop dairy, no fried foods…yada yada. These were things I’ve eaten / drank all my life. I don’t know what your besides “long tortuous colon”….that’s what they told me “but it’s nothing you’ve done”. But I found out after years of CAT scans, ultrasounds…nobody EVER found anything until my GI of 8 yrs told me, “all your gut issues could be caused by my hip implant, & Not a Dr. In the world would admit it”. That was my last visit with her. I got REALLY sick…bloated up to 170 lbs. got hip rev, stayed on soft foods, am back to normal weight, but STILL can’t wear normal clothes!
I feel your pain & discomfort. It still flares up now & then, even if I’m not eating…I have noticed that if I get really stressed, it can happen. It hurts like hell. 🤷‍♀️
I’m pretty sure I posted b4 what I “eat / drink”…. Any juice, prune, V-8, water water water, potatoes, green beans, soup, protein shakes, milk shakes….& sometimes an ounce or 2 of Jagermeister can help….not always, but more than not. That’s just me. Can’t wait til I can wear normal underwear / clothes…but at this point, I’m not holding my breath.
Good luck to you 🙏

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Replies to "I TOTALLY get that! I’m 5’ 2” , I weigh 130, I have to wear maternity..."

To: sickofbeinsick1 AKA Tina
Thanks for the details although you may tire of reciting them as I am of repeating all my symptoms and "issues". I have a few more issues than you have, but I will spare you. I haven't had a hip implant, however. My issue is serious weight and muscle mass loss, not gain.
A few of your ideas give me hope and if you have time, I'd like to hear more . . .
1. Maternity underwear? Like you, with any pressure anywhere on my trunk, the usual pain increases quickly so I limit my time in public where I try to look presentable. Can you suggest any online sources of big, stretchy maternity underpants that don't fall off? How do yours stay up? Stretchy throughout? Although I am 5'4" (was 5' 9" before compression fractures) and 103 lbs, my bloated tummy is VERY large.

2. Protein shakes/powders? - I'm new to protein shakes but bought some soy milk powder to mix with water, peanut butter, maybe a frozen banana and some dates but I think there are higher protein ingredients. Any suggestions?

It sounds like you have made a LOT of progress. Normal underwear and nice clothes may well be in your future!