← Return to CA-125 Results Went Up: Should I be concerned?

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CA-125 Results Went Up: Should I be concerned?

Gynecologic Cancers | Last Active: Jun 4, 2023 | Replies (48)
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@carole2022

Thanks for replying, Helen. Basically, I believe her oncologist said it wasn't the be all and end all (my words).
She will be having another scan tomorrow. She has Clear Cell carcinoma and the tumor was a little larger with the first round. Hoping the 2nd round has helped, but was somewhat alarmed when the CA125 test levels started to rise again.

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Replies to "Thanks for replying, Helen. Basically, I believe her oncologist said it wasn't the be all and..."
odette | @odette | Sep 19, 2022

Dear Carole,
I do not write frequently on this site because clear cell carcinoma is rarely addressed, but my name was listed as a potential contact. More than five years ago I was diagnosed with OCCC so I do have some knowledge and certainly experience with this rare histology.
I hope your daughter is managing both physically and emotionally with your support as well as that of her medical team. It was not clear to me that she has had surgery.
I am happy to communicate if it would help.

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