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Looking to connect with people who have non-diabetic neuropathy

Neuropathy | Last Active: 17 hours ago | Replies (911)
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@graysea

I struggle with Small Fiber Neuropathy. It was caused by the sudden discontinued prescription. It took two years to diagnose so treatment has been slow and painful. I do take Gabapentin, but it is unwise because of the side effects. Resting or night time I have the worst pain. Do you experience the same thing at night?

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Replies to "I struggle with Small Fiber Neuropathy. It was caused by the sudden discontinued prescription. It took..."
Rachel, Volunteer Mentor | @rwinney | Jul 20, 2022

Hi @graysea, welcome to Connect. I'm sorry you struggle with SFN. How long have you been taking Gabapentin? Nerve medications, like Gabapentin and Pregabalin (Lyrica) can take quite a while to adjust to. Side effects may become less noticeable over time and you may determine the benefits of relief are worth it. Is your doctor still increasing your dose?

Resting, or at night is a common time to feel increased pain and sensitivity. What distraction do you find during those times? I'm big on word search puzzles. Also, don't underestimate the power of positive self-talk. Do you tell yourself positive mantras?

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