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DiscussionDiagnosed with moderate/severe poly neuropathy: sensory motor
Neuropathy | Last Active: Mar 10, 2023 | Replies (45)Comment receiving replies
Replies to "Hi - well, you are not alone! I have axonal sensorimotor PN and numbness from shins..."
I can almost feel normal. Also, of recent; as I was having itching attacks at night which woke me up and I just could not resist itching to the point of bleeding, my dr. gave me a prescription on for lidocaine patches which are helping a lot. I only put one on if during the day I am getting that "feeling." Please report your experiences should you get the hokas. They're around $150. My left pinky is also a bit numb. When I wake up, often my hands are numb up to the elbow but on adjusting myself, this corrects to normal. doc thinks it has to do with a pinched nerve. I changed my docs this this year to the concierge model and I am so, so very happy with this. I carry around his number and I can call 24/7 7 days a week if need help. I have never done this and do not intend to unless it is a real emergency. I recommend this to others who can afford it at 5K a year. I am not a "fat cat" and it was a stretch to go this way but I figured...here I am almost 75 and as expected I am breaking after so many years on the planet and I will give it a try. He is more than a doc...he is an advocate, a health warrior for me and it is just very, very reassuring. Kaiser docs had me on the clock every time and the neurologist kept saying, " take more gabapentin" and that was IT. I keep very active, walking, stretching, lifting a few weights and eating right. my weight is ok and by the way, if anyone has weight issues....that would be #1 to address in my opinion. Best to all.