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@njed

Hi - well, you are not alone! I have axonal sensorimotor PN and numbness from shins to toes along with bilateral drop foot. Idiopathic. I'm 72 and got dx at Mayo early 2020, mine started in 2014 or so....very slow. Seems to level for a while, then gets slightly worse. Slight numbness in fingertips started in 2019. I have AFO's for foot drop and they also help about 70% with my very poor balance. We have 3 grown children and from the start I've tried to be open about my diagnosis and I've found that by me being up front on what I can and can't do has helped them as well...when does dad need a hand and when doesn't he. If I need help with something, they know I'll ask. For the most part, my wife and I walk to some degree every day and in winter, I walk inside. I cut my own grass over a two-day period...walking. I can't hide AFO's with shorts on so this has helped me to be open about my condition. I am going to look into your HOKA suggestion as there are times when I don't wear the AFO's. Thanks and be well.

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Replies to "Hi - well, you are not alone! I have axonal sensorimotor PN and numbness from shins..."

I can almost feel normal. Also, of recent; as I was having itching attacks at night which woke me up and I just could not resist itching to the point of bleeding, my dr. gave me a prescription on for lidocaine patches which are helping a lot. I only put one on if during the day I am getting that "feeling." Please report your experiences should you get the hokas. They're around $150. My left pinky is also a bit numb. When I wake up, often my hands are numb up to the elbow but on adjusting myself, this corrects to normal. doc thinks it has to do with a pinched nerve. I changed my docs this this year to the concierge model and I am so, so very happy with this. I carry around his number and I can call 24/7 7 days a week if need help. I have never done this and do not intend to unless it is a real emergency. I recommend this to others who can afford it at 5K a year. I am not a "fat cat" and it was a stretch to go this way but I figured...here I am almost 75 and as expected I am breaking after so many years on the planet and I will give it a try. He is more than a doc...he is an advocate, a health warrior for me and it is just very, very reassuring. Kaiser docs had me on the clock every time and the neurologist kept saying, " take more gabapentin" and that was IT. I keep very active, walking, stretching, lifting a few weights and eating right. my weight is ok and by the way, if anyone has weight issues....that would be #1 to address in my opinion. Best to all.