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Idiopathic Small Fiber Neuropathy Research

Neuropathy | Last Active: Apr 4 8:41am | Replies (132)

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@johnbishop

Hello @flag64, Welcome to Connect. I'm sorry to hear you haven't found much relief yet for your neuropathy. It can be very discouraging when you first start your journey trying to find something that helps. The best thing you can do to help is learn as much as you can about the condition and treatment options available. Here are my two favorites for learning more about neuropathy.

-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

@avmcbellar has mentioned digestive issues in another discussion here and may have some thoughts for you -- Stomach Neuropathy: https://connect.mayoclinic.org/discussion/stomach-neuropathy/

From my perspective I do believe diet helps neuropathy. I've also stopped drinking alcohol and try to limit the amount of sugar I take in along with eating healthy. I do think it makes a difference. What got me started eating healthier was after reading Dr. Terry Wahls story who has MS was able treat her symptoms and go from a wheel chair back to riding her bicyle -- https://terrywahls.com/about/about-terry-wahls/.

Do you mind sharing a little more about your diagnosis and treatments you've tried?

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Replies to "Hello @flag64, Welcome to Connect. I'm sorry to hear you haven't found much relief yet for..."

In December on 2019 I started feeling numb in my calves, I’ve been having stinging, pins/needles pain along with numbness in my hands/feet for years but because I’m dealing with other medical issues of higher importance we weren’t addressing those symptoms until they were progressing in severity and moving up my body. Neurologist diagnosed me with autoimmune Small Fiber & we started the antidepressant, gabapentin and anti seizure route. I also stopped drinking, no caffeine and chocolate plus already eat very well since I’m a celiac. I have reintroduced a little caffeine lately (not a saint!) and walk 2 miles 5 days a week. That’s my info and thanks for the links.