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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)Comment receiving replies
I'm new to this group; have had PN for at least 15 years; started abruptly one day with toes being numb; then it progressed so that now, both feet are numb. Thankfully, I don't have pain, but it feels like I walk around on sponges. I have been using frankincense and myrrh oil, massaging it into my feet each night for about 2 months now. I think MAYBE there is some relief going on. Has anyone else every tried it?
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I recently started using Magnesium lotion in my feet and like what it’s doing!
My PN sounds like yours. Gradually toe, foot, shin numbness progressed over 6 yrs. No pain. No other health issues however blood work showed very high levels of B6. B6 in high levels can cause PN that does not just go away even when levels in blood return to normal. Have you had B6 levels checked? I unknowingly was taking too much b6 in melatonin without knowing this.
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Welcome @dot1, Your diagnosis sounds a lot like mine. I shared my story in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/
Early on my diagnosis is 2016 I tried a lot of different things including essential oils for neuropathy like Frankincense and Myrrh but didn't find much relief. Now I do rub lotion on my feet and legs nightly to keep the skin hydrated which I think does help some. The Foundation for Peripheral Neuropathy lists a lot of different complementary and integrative treatments that you might find helpful - https://www.foundationforpn.org/treatments/.
What type of shoes do you find the most helpful for walking and comfort?