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Idiopathic Small Fiber Neuropathy Research

Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)

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@flag64

I’m new to this diagnosis, about 13 months. The pain is increasing as is my dosage of gabapentin! I’m not finding much encouragement reading this sight regarding treatment nor research. I’m going to naively ask has anyone found any relief from a diet? I’ve completely stopped drinking alcohol, 10 months even though this wasn’t an issue. I’m a celiac / hypothyroidism gal tested positive by skin graft.

Also are any of you having gastric issues?

Thanks!

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Replies to "I’m new to this diagnosis, about 13 months. The pain is increasing as is my dosage..."

Hello @flag64, Welcome to Connect. I'm sorry to hear you haven't found much relief yet for your neuropathy. It can be very discouraging when you first start your journey trying to find something that helps. The best thing you can do to help is learn as much as you can about the condition and treatment options available. Here are my two favorites for learning more about neuropathy.

-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

@avmcbellar has mentioned digestive issues in another discussion here and may have some thoughts for you -- Stomach Neuropathy: https://connect.mayoclinic.org/discussion/stomach-neuropathy/

From my perspective I do believe diet helps neuropathy. I've also stopped drinking alcohol and try to limit the amount of sugar I take in along with eating healthy. I do think it makes a difference. What got me started eating healthier was after reading Dr. Terry Wahls story who has MS was able treat her symptoms and go from a wheel chair back to riding her bicyle -- https://terrywahls.com/about/about-terry-wahls/.

Do you mind sharing a little more about your diagnosis and treatments you've tried?