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← Return to Perineural or Tarlov cysts
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Spine Health | Last Active: Apr 18 5:37am | Replies (96)
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I have not been looking at Mayo for a while. After 4 years and many doctors I have just found out it must be the 2 Tarlov Cysts that is causing my vulva and vaginal pain. Thanks for letting me know you have debilitating vaginal pain. When I read about Tarlov Cysts I have not heard that they caused vaginal pain. Your response has helped. I have an MRI etc to send to Dr. Feigenbaum in Texas on Monday. I have heard that many times the operation to remove the Tarlov Cysts
works and the pain goes away. I have been to about 8 doctors in 4 years and finally the GYN who I have been going to for years changed his diagnosis from Vulvodynia to Tarlov cysts.
I hope that Dr. Feigenbaum in Texas can help.
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Hi @francesmharris123 Do you have any updates for what is happening with your Tarlov cysts? My primary doctor consulted with the neurosurgeon in her medical group and denied my request for a new MRI and let me know that per the neurosurgeon Tarlov cysts are asymptomatic. I am researching another way to get a current MRI sent to Dr F in Texas to see if he thinks my cyst could be causing my sciatica and interstitial cystitis pain. They both started in October of 2014. I am so interested in others’ journeys with this condition. Thanks!