@gardengal33, @babette, @lynettegable and all...My son has extreme pain from 20 years with dystonia. He's in crisis the last months, due to the length of time with no or little help and such limited knowledge about this disease. After calling and begging the pain doc for help, he had 3 nerve blocks the last 2 months, each lasting about 12-15 hours with some relief. Not so good.

Friday, the doc worked him in for an ablation, but was very concerned he wouldn't be able to stay still enough for long enough and could have dangerous consequences. He doesn't understand the degree of pain nor the strength of my son's will. He said he'd do it so he had the procedure.

It was pretty tough. He went in his mind to the beach, the water. He was in a lot of additional pain, but he was still and today is feeling a good amount of relief. We'll see how long. The expectation is several months of relief. I truly will be thrilled with a month or several weeks of relief.

We see the Mayo neurosurgeon next week for a consult re deep brain stimulation or other surgery possibilities. Doubtful he'll qualify, but possible there is something new to discuss.

It seems the ablation is a good way to go if you have little relief from blocks and meds. I hope you do well and be blessed. elizabeth