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CRPS - anyone suffering with complex regional pain syndrome
Chronic Pain | Last Active: Oct 25 3:58am | Replies (366)Comment receiving replies
@drg24242 Hey, Darryl. You are very welcome. Thank you for sharing more about yourself and your circumstances. I'm so sorry to hear you lost your wife 4 years ago. I can't imagine how difficult that has been for you.
No, Darryl, you are not alone and I think it's great that you are on Connect. May I ask how you found us and what ultimately lead you here? Was it to learn more about CRPS? That's what lead me to Connect, researching my condition, and along the way I found friends, too.
You said something so important and that is that "you can" learn. No matter the time it takes, please know that your mind being open in the first commendable step. It must be tough dealing with doctors and decision making alone. May I ask how you do going to doctor appointments? If you're like me and forget half of what doctors say, do you bring a notebook with your questions and to write down answers?
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Hi Rachel. In answer about how I found Connect. I , like you , doing research to educate and trying to get help for my CRPD. Now that my eye slight is slightly impaired and do not fell safe drivig I get to my dr. appointments that are more than 4-5 miles away. I take what is called Acess. It is a service in Pa. , for the elderly or disabled, thay will send a little bus to your home at a minimal cost. Ya, sometimes they get you there 1-2 hours early and you have to wait for them to pick you up for an hour but it's butter than getting in a wreck and hurting myself and others. I think I'm prepared for the appointments this week. All my questions that I have thought of are written in a note book, leaving enough room for more that I will think of during night. Darryl