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← Return to Chronic left side pelvic pain
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@rwinney thank you for sharing the video. It’s very interesting, and I plan on watching it again with my husband. While some of it resonates with me, other parts don’t although that could be because I want answers to what is causing this so badly. I’m on day 3 of an awful flare, so I’ve decided to watch again it calms down. For me, my biggest question remains of, if this is truly all from nerve damage, how did it start to begin with- since it did start before I ever had surgeries and why does it flare every month? I know I need to start thinking outside the box more instead of in black & white. Search those gray areas but sometimes it’s so hard. Glad I found this group, reading through posts gives me some hope.
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@help123 Yes, hope, keep it alive because no matter how hard things get, they won't stay that way forever.
Again, I have no clue if what you're experiencing is in fact CSS. Please keep in mind that not every symptom or circumstance in the video apply to each person. Watch with grey area in mind. Maybe your husband will be helpful. It's always better to have a second set of eyes and ears.
Speaking of eyes, a little about me, I had corneal transplant and cataract surgeries when I was 43, and although my vision was corrected and the surgery was a success, it began an upregulation of my central nervous system.
Sometimes surgery, stress, an accident, can create CSS. There is no MRI or CT scan to prove the upregulation, it's process of elimination and ruling out causes until there are no answers and it comes down to management of symptoms. Also, assessing failed treatments, inexplainable pain or symptoms, emotional distress.
I only share this with you because I was the person looking for answers for 3 years, and by age 46 I was no longer able to work and became disabled. I drove myself crazy, being a perfectionist, not accepting my symptoms and going down many rabbit holes.
You're in good hands here on Connect. I'm sure you'll continue to receive support and encouragement as you navigate your condition. I'm rooting for you and keeping hope alive!