I can relate but have found a reg p.t. regimen that works for me. It sounds nuts to exercise when you hurt so bad but walking is best overall I have found. I thought my rheumatologist was nuts when I could hardly get off my couch and walk to the bathroom but I trusted him ( which I don't do easily) and did what he said. Went from going out door to end of grass and back then each day I would take just two more steps. Eventually I worked my way up to 3 miles one way and back. Due to other difficulties in health now I am no longer able to go that far but do in home physical therapy routine and still walk a few blocks at a time. I used to be on gabepentin at 3200 mg a day plus diladid pain meds 3-4 times a day. I started using cbd gummies. I quit it all and only have to take an aleeve here and there when have a bad flare up. I am so relieve from all muscle aches and pains. My trigger points are not in flare constantly anymore. A doctor can do only what they are aware of thru guidelines. IT IS UP TO OURSELVES to find out what works best. I am now only on my med for chemical imbalance and vit d3 in winter as don't do much outside then so don't get enough sunlight. Just so others know I also suffer with Ehlers Danlos Hypermobility. Interstitial Cystitis, Artificial Hip, Chronic Fatigue, Fibromyalgia, due to EDS have had 3 back surgeries, neck surgery with plate and screws, and shoulder anchor put in. P.t. has been a life saver for me. I have been doing this for years and any time I stop for more than two weeks I start getting weak again and pain and flares start back up. God made our bodies to move not be sedentary. The food we eat is a big factor also. All the quick convenient foods today are JUNK. Get back to the basics of fruits and veggies with little meat. Stay away from the sugar and refined processed foods. We all want a magic pill to cure us--- it's not that simple and honestly they are actually more harm than good. Just put more toxins in TBE body that we have to try to fight off. Hope this helps someone get to a better place in living !!