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How long has PMR lasted - I'm trying to find the average

Polymyalgia Rheumatica (PMR) | Last Active: Dec 26, 2023 | Replies (136)
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@lmoross

I was told by a doctor at the University of Iowa 1-4 years average.
But others have told me they don’t know, just like the cause and why it disappears. I am starting year five. So tired of prednisone and the side effects. Have tried methotrexate and other drugs to no avail. Starting Actemra infusions now as my rheumatologist thinks I may also have seronegative RA. I think she may be running out of treatment options. I fear this may be my future life. Anyone else have horrible attacks of sweating from prednisone?
Thank you and best wishes.

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Replies to "I was told by a doctor at the University of Iowa 1-4 years average. But others..."
c75 | @c75 | Jul 9, 2022

I do have the
Sweating and as it is I tolerate it because the pain is so much better . Difficult side effects for sure but better than pain. Take care and listen to our bodies. Each person is unique.

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missy3134 | @missy3134 | Jul 11, 2022

I have had many attacks of sweating over the past year on Prednisone. A friend informed me that it was due to the medication.

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DadCue | @dadcue | Nov 2, 2023

I was treated by a rheumatologist, an ophthalmologist and a primary care doctor at the University of Iowa for about 15 years. I also had numerous referrals to other specialists.

I was happy with the care I received. My doctors responded to every inquiry and I never felt like I was fending for myself. I think they were running out of treatment options for me as well.

When I retired, I switched over to the VA in Iowa City. There was continuity of care because doctors at the University are also staff doctors at the VA. The rheumatologist at the VA knew all about me at my first visit and was able to offer Actemra to me.

I also tried MTX and other drugs to no avail. Seronegative RA was on my problem list in addition to PMR There were other medical problems that weren't autoimmune related along with complications from long term prednisone use.

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