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Fibrillary glomerulonephritis

Kidney & Bladder | Last Active: Aug 21, 2023 | Replies (76)

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@colleenyoung

Welcome @lianelady. I'm sure fellow members living with fibrillary glomerulonephritis (GN) like @jennifer208 @danab1968 @kkmommy @gingerw @vhussey29 @va63 @danab1968 will appreciate connecting with you.

Liane, when you were diagnosed with GN? How is your kidney function?

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Replies to "Welcome @lianelady. I'm sure fellow members living with fibrillary glomerulonephritis (GN) like @jennifer208 @danab1968 @kkmommy @gingerw..."

I was diagnosed with FibGn Jan 2018 from a biopsy at Mayo Jacksonville. I have done 8 rounds of rituxan over the last 4 1/2 years. I also have a rehamatological immune inflammatory disease that doctors aren't quite sure what it is. I have been on immune suppressants this whole time, along with 2 different blood pressure meds. My urine is checked every 4 weeks and blood tests every 3 months. I am very lucky and i have surprised my nephrologist. I am in partial remission and my kidney function is stable.

What what a great job you’re doing Colleen to keep track of all of us and our conditions.. Thank you!