@help123 Hello, Maran. I have so much to say, and offer, especially given your age and circumstance. It's tough for me to read your bio and opening thread requesting help, as I was once where you are now. Thank you to Teresa @hopeful33250 for making me aware of your request for help.

I'm sorry that you are in this place of uncertainty without a firm diagnosis for your continuing flare ups of pain. Your surgeries (which were def needed by the sounds of it) appear to be successful, a prior inaccurate diagnosis of diverticulitis, the plethora of meds you are on, shots, injections and blocks, heating pads, You my dear are trying, and persevering, that gets taxing and definitely adds to pain flare ups. It's awful when all you hope for is a solid, "this is what you have", so you can fix it and get on with life. I do think your new OBGYN is correct and that you are experiencing nerve pain.

Being turned down by Mayo is like a punch in the gut. I was turned down too which for me meant, think outside the box. I found this video by Mayo Clinic's Dr. Sletten talking about Central Sensitization Syndrome (CSS). I had learned of CSS through my own research and when I watched this video, a lightbulb went off. I burst into tears and made my husband watch it with me again. It finally gave definition to my mystery of chronic pain that no doctor could explain. It answered why treatments were not really working for me and why nothing showed up on tests.

I'm not a doctor and don't know if there's something bigger to your picture. Maybe your OBGYN is on to something. Maybe pursuing Mayo is important because you still need to be sure and rule more possibilities out with a top notch facility. Maybe other members will offer ideas or experiences to help.

In the mean time, here's the video by Dr. Sletten:

Please watch and see if it resonates with you and some of the things you've been going through the past 2.5 years. If nothing else keep the information on the back burner while you continue to pursue other answers. Not for nothing, doctors don't have much of a clue about thinking outside the box. They tend to stay in their lane.

Will you let me know your thoughts on the video? I'd love to help in any way I can...support. encouragement, letting you know that you are not alone and there is hope.