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← Return to Chronic left side pelvic pain
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Thank you both for responding. I have only tried Mayo in Rochester, MN. It’s about 3.5 hours from me so within driving distance. I guess I have my doctors keep trying, as will I. I’ve heard from many that you have to know someone to get into Mayo in MN. I hope that’s not the case, but from things I’ve heard it does seem that way. As far as things that help, I live on heating pads, take Tylenol and Aleve. Gabapentin, amitriptyline and get toradol shots on days that I just can’t take it. Hip/back injections, and trying a gastric ilioiguinial nerve block next. So far, not much relief with any of it, but it makes it so I can function.
I, more then anything want a diagnosis, and if I can’t get that something, anything to bring me some relief. It’s getting hard to live everyday like this.
Replies to "Thank you both for responding. I have only tried Mayo in Rochester, MN. It’s about 3.5..."
My doctor called Mayo MN at our appointment and I was scheduled right then in her office with Mayo. First appointment was about 2 months wait. But has been moving along since. My Mayo doctors have everything that can be done locally her in Michigan ordered and done and sent to them. Then we talk and decide nest steps. I am back 3rd trip to MN next week July 16th -20th. More testing to see if my intestines can handle enough pressure to withstand surgery. If they can next tests on kidneys for same. If all goes good surgery will be explained and decided on. If not. Well- there is nothing else they can do. And my doctors have been compassionate but upfront and honest with us. Just for today I am going to have faith that God’s in charge not me. I just do the footwork. Good luck on all your journey’s.
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Good evening @help123. I am the lady who knocked on the Mayo Clinic door several times over a five-year period, Chris Trout. I am thrilled that I was accepted as a Mayo patient as you will read in Teresa's link to my post. Have you tried an online application? The form lets you use your own words to present your need for help. I was also impressed with the last section called the Wrap-up....sort of your bottom line need for assistance. Our own words sometimes are received differently than just a completed form. However, I don't know the answer and yet I am sure that admission to Mayo isn't just offered to those who know "someone". I know my life partner and he has been a Mayo patient since he was two years old. He is a prostate cancer patient and I am his caregiver.
I want to say keep trying and in the meantime may you be free of suffering and the causes of suffering.
Chris