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Small Fiber Neuropathy biopsy test results
Neuropathy | Last Active: Feb 15 2:46pm | Replies (36)Comment receiving replies
I saw Dr. Staff at Mayo in Rochester. He is a great neurologist an helped me deal withy local neurologist. He spent an hour with me. First, he explained all the testing I had done at my local neurologist. The test he had done and then he asked me to tell him my total history. I had had a Stem Cell Transplant 8 1/2 years ago at Mayo and my local doctors had tried to blame chemo on my issue. He explain that it is not due to chemo. He believes my back has damage that does to show on an MRI (I had back surgery 3 years ago). He explains why not to have another surgery etc etc. My puzzle isn't solved, but I am in PT and the big thing is he listened.
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Joanne, Thank you for your story. I think that is great that you had someone listen to you about something so very important. I am seeing some of the not listening myself. I understand frustration because I have it. I have bulging discs and different things in my back. They found a syrinx on my MRI that was done with contrast. A syrinx is a fluid filled bleb inside your spinal canal. Things like that are not suppose to be there. If it grows in size it can cause issues. The neuro that I saw did MRI but without contrast. The syrinx can go away but mine was small in diameter when it was found. That is one of the things I am going to ask about. Also at C7-T1 I have a small parental disc protrusion cause some right lateral recess stenosis. I have multi-level spondylosis and back issues run in the family. I don't believe what I have is causing the SNF. I am gonna work on an appt to Mayo in Jacksonville. My puzzle is not solved either but I am continuing to work on it. Good luck to you on your puzzle. Hope you get more answers.