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@auntieoakley

Ugh, for the no new answers. This has to be terrifying and exhausting. I cannot imagine how awful this is. This patchwork of I don’t know answers seems like the trouble we have in our little rural area. We have to travel for good care.
Can I ask if you are close to a large cancer center you might be able to get a comprehensive look?

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Replies to "Ugh, for the no new answers. This has to be terrifying and exhausting. I cannot imagine..."

That IS what I need , but it seems in Portland, OR ( where I moved to ) the hospitals are understaffed and I'm always fighting my way in , as the squeaky wheel saying goes. Even after many phone calls and then also getting my records and sending my scans and files to Providence , no reply or follow up , nurses about to strike also .. OHSU is another option . It's been "at my cost" to get in there ,and no one will say how much it will cost , for the 2nd opinion there , as Kaiser has refused to cover it . It's exhausting !!