Welcome @lianelady. I'm sure fellow members living with fibrillary glomerulonephritis (GN) like @jennifer208 @danab1968 @kkmommy @gingerw @vhussey29 @va63 @danab1968 will appreciate connecting with you.

Liane, when you were diagnosed with GN? How is your kidney function?

@lianelady Welcome to Mayo Clinic Connect! It is a rarified atmosphere to be diagnosed with the fibrillary glomerulonephritis. My kidney disease is also from that glomerulopathy issue, but involves collagen deposits in my kidneys.

We're here for you when you have questions. Heck, any time you need support we are here for you to vent away. I know how helpful it is to not feel alone. Who is around you for a support team? I find it is important to have people in your corner, and please reach out to them.

Here is an article from the National Institute of Health about your condition. Questions? Concerns? Ask away, please! https://rarediseases.info.nih.gov/diseases/12740/fibrillary-glomerulonephritis
Ginger