I take 100mg of Gabapentin 3 times a day. Most of the time it is helpful but every now and then all the symptoms come back full force like last night no sleep pain was so bad.
Anyone experience this even on meds.
I take 300 mg of gabapentin 3 times a day. If I miss a dose my feet feel dead. I keep trying supplements because I want to be able to drive again. I'm 80 and life is actually good. Gabapentin kind of acts like a happy pill for me.
I sleep well with a concoction of Benadryl, CBD, ibuprofen, melatonin and half a Trazadone,
I take 300 mg of gabapentin 3 times a day. If I miss a dose my feet feel dead. I keep trying supplements because I want to be able to drive again. I'm 80 and life is actually good. Gabapentin kind of acts like a happy pill for me.
I sleep well with a concoction of Benadryl, CBD, ibuprofen, melatonin and half a Trazadone,
I'm 85 with my heart condition I have atrial fib I can't take what you take at night.
It sounds like you are doing well.Thank you so much for your help and blessings to you.
@user_ch98d0b5c - Well, I fit that condition...idiopathic peripheral neuropathy. Unlike John, mine comes with a ton of pain. The possible cause may be previous injuries like falling off horses and down mountains. I am happy to offer what does and does not work for me to provide some relief. Just let me know and I can send you a private message or post for all.
My diagnosis: idiopathic peripheral neuropathy. But to John, I can't wear socks, each wrinkle is painful and I can't go barefoot because my feet feel splayed, so balance is a hazard, and the floor feels too cold. I wear slip on brand Merrill shoes and no socks even in winter.
I'm 85 with my heart condition I have atrial fib I can't take what you take at night.
It sounds like you are doing well.Thank you so much for your help and blessings to you.
I sleep fine without adding the Benadryl if that is what you can't use with a-fib. My body always makes up for a lack of sleep, If i don't get enough one day because I have an appointment in the early morning (early to me) I just sleep an extra few hours a few days later. I have no control over it and it is actually weird!
I sleep fine without adding the Benadryl if that is what you can't use with a-fib. My body always makes up for a lack of sleep, If i don't get enough one day because I have an appointment in the early morning (early to me) I just sleep an extra few hours a few days later. I have no control over it and it is actually weird!
Has anyone heard of non-diabetic peripheral neuropathy being caused by COVID infection.
I'm 59 in pretty good health, and believe I (and family) got COVID in late February before the emergency declaration. We (Family) all got pretty sick including shortness of breath. Peripheral neuropathy started shortly after that and I did nothing about it. Got vaccinated as soon as was available - but got COVID again in Jan 2022. My peripheral neuropathy got worse so in March made a few lifestyle changes including increasing exercise and reducing alcohol intake. By May was walking an hour a day 4 times a week and also gym 3 to 4 times. Stopped alcohol completely. My peripheral neuropathy was a little better but certainly still an issue.
In mid June I added nerve friendly vitamins (B group, Alpha-lipoic acid, tumeric etc) and also decided to eliminate coffee (3/4 cups per day) about a week later. Of all the things I have tried the elimination of caffeine has had the most immediate and positive effect. I'm in my second week caffeine free and its a noticeable difference - not fixed but better.
Interested if anyone has had a benefit from less caffeine or has any other key diet tips. My thoughts are that the process I have been on has been cumulative - more exercise, no alcohol, no caffeine
Has anyone heard of non-diabetic peripheral neuropathy being caused by COVID infection.
I'm 59 in pretty good health, and believe I (and family) got COVID in late February before the emergency declaration. We (Family) all got pretty sick including shortness of breath. Peripheral neuropathy started shortly after that and I did nothing about it. Got vaccinated as soon as was available - but got COVID again in Jan 2022. My peripheral neuropathy got worse so in March made a few lifestyle changes including increasing exercise and reducing alcohol intake. By May was walking an hour a day 4 times a week and also gym 3 to 4 times. Stopped alcohol completely. My peripheral neuropathy was a little better but certainly still an issue.
In mid June I added nerve friendly vitamins (B group, Alpha-lipoic acid, tumeric etc) and also decided to eliminate coffee (3/4 cups per day) about a week later. Of all the things I have tried the elimination of caffeine has had the most immediate and positive effect. I'm in my second week caffeine free and its a noticeable difference - not fixed but better.
Interested if anyone has had a benefit from less caffeine or has any other key diet tips. My thoughts are that the process I have been on has been cumulative - more exercise, no alcohol, no caffeine
Welcome @dp33, I posted two articles on COVID and neuropathy from the Neuropathy Commons website in another discussion that might be helpful here -- Neuropathy post-Covid infection: Is there treatment that helps?: https://connect.mayoclinic.org/comment/723725/.
I'm happy to hear you've found some lifestyle changes to help with your neuropathy symptoms. I have cut down on my coffee quite a bit and now limit it to one or two cups in the morning to get me going. I also try to watch the sugar and carbs that I take in daily. There is another discussion you might want to join in here:
Welcome @dp33, I posted two articles on COVID and neuropathy from the Neuropathy Commons website in another discussion that might be helpful here -- Neuropathy post-Covid infection: Is there treatment that helps?: https://connect.mayoclinic.org/comment/723725/.
I'm happy to hear you've found some lifestyle changes to help with your neuropathy symptoms. I have cut down on my coffee quite a bit and now limit it to one or two cups in the morning to get me going. I also try to watch the sugar and carbs that I take in daily. There is another discussion you might want to join in here:
@johnbishop
- the study link was very informative. My primary care Dr made the diagnosis and am waiting for a neurology appointment. I have one booked but interested if you know any good specialists in San Diego
Thanks
@user_ch98d0b5c - Well, I fit that condition...idiopathic peripheral neuropathy. Unlike John, mine comes with a ton of pain. The possible cause may be previous injuries like falling off horses and down mountains. I am happy to offer what does and does not work for me to provide some relief. Just let me know and I can send you a private message or post for all.
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I take 100mg of Gabapentin 3 times a day. Most of the time it is helpful but every now and then all the symptoms come back full force like last night no sleep pain was so bad.
Anyone experience this even on meds.
I take 300 mg of gabapentin 3 times a day. If I miss a dose my feet feel dead. I keep trying supplements because I want to be able to drive again. I'm 80 and life is actually good. Gabapentin kind of acts like a happy pill for me.
I sleep well with a concoction of Benadryl, CBD, ibuprofen, melatonin and half a Trazadone,
I'm 85 with my heart condition I have atrial fib I can't take what you take at night.
It sounds like you are doing well.Thank you so much for your help and blessings to you.
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2 ReactionsMy diagnosis: idiopathic peripheral neuropathy. But to John, I can't wear socks, each wrinkle is painful and I can't go barefoot because my feet feel splayed, so balance is a hazard, and the floor feels too cold. I wear slip on brand Merrill shoes and no socks even in winter.
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3 ReactionsI sleep fine without adding the Benadryl if that is what you can't use with a-fib. My body always makes up for a lack of sleep, If i don't get enough one day because I have an appointment in the early morning (early to me) I just sleep an extra few hours a few days later. I have no control over it and it is actually weird!
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1 ReactionThank you sounds like you are doing well.I have an appointment in September I will see if she wants change anything.
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1 ReactionHi, - I'm a new member.
Has anyone heard of non-diabetic peripheral neuropathy being caused by COVID infection.
I'm 59 in pretty good health, and believe I (and family) got COVID in late February before the emergency declaration. We (Family) all got pretty sick including shortness of breath. Peripheral neuropathy started shortly after that and I did nothing about it. Got vaccinated as soon as was available - but got COVID again in Jan 2022. My peripheral neuropathy got worse so in March made a few lifestyle changes including increasing exercise and reducing alcohol intake. By May was walking an hour a day 4 times a week and also gym 3 to 4 times. Stopped alcohol completely. My peripheral neuropathy was a little better but certainly still an issue.
In mid June I added nerve friendly vitamins (B group, Alpha-lipoic acid, tumeric etc) and also decided to eliminate coffee (3/4 cups per day) about a week later. Of all the things I have tried the elimination of caffeine has had the most immediate and positive effect. I'm in my second week caffeine free and its a noticeable difference - not fixed but better.
Interested if anyone has had a benefit from less caffeine or has any other key diet tips. My thoughts are that the process I have been on has been cumulative - more exercise, no alcohol, no caffeine
Thanks
-
Like -
Helpful -
Hug
1 ReactionWelcome @dp33, I posted two articles on COVID and neuropathy from the Neuropathy Commons website in another discussion that might be helpful here -- Neuropathy post-Covid infection: Is there treatment that helps?: https://connect.mayoclinic.org/comment/723725/.
I'm happy to hear you've found some lifestyle changes to help with your neuropathy symptoms. I have cut down on my coffee quite a bit and now limit it to one or two cups in the morning to get me going. I also try to watch the sugar and carbs that I take in daily. There is another discussion you might want to join in here:
-- Eliminating Foods for Neuropathy pain: https://connect.mayoclinic.org/discussion/neuropathy-pain-1/
Have you been diagnosed with a specific type of neuropathy?
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3 Reactions@johnbishop
- the study link was very informative. My primary care Dr made the diagnosis and am waiting for a neurology appointment. I have one booked but interested if you know any good specialists in San Diego
Thanks
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Hug
1 ReactionI’m a victim of peripheral neuropathy too. Can you tell me what works for you?