Robyn, Twenty five years is a long time to deal with medical issues. It can become tiring to people when they want to know things. The pill thing is something else. I have had trouble myself dealing with this idiopathic SNF. It's the not know that can hurt you. Too many people just go along with things and I am not that way. Not all Doctors are bad. I have seen some good ones. I am a firm believer that you have to question things but a lot of people don't. I have always advocated for the patient. I have had patients tell me their Drs are God. (I went crazy over that one). They are just people with a degree and they can make mistakes. I have told patients that if they are unhappy with their Dr. find another one. As I said before I love my cardiologist and she did right in giving me metoprolol for my heart rate and she also saved my husbands life. I want to question what else can I expect. Even though we have it I don't like the unknown. If I can be prepared I want to be. I want to see a cardiologist regarding my SNF and my heart. They also have neuro-opthalmologists at Mayo. I see one here and he is really good but I want to see one that may have seen more patients with SNF. The pin pricks in my eyes are scary to me and if I can I would like to know where I stand on that. As of yet I haven't met anybody that has had those. I also saw they generally put the private insurances out that the Dr. carries. I called my primary insurance and they said no problem with me going to Mayo. Thank you so much for your information on making appointments. I would like to see a neurologist at Mayo for a second opinion but I am not sure based on the fact that I am idiopathic and they have already tested me that I can get an appt. I am not giving up and I am gonna go for it. I will definitely let you know how it goes. I appreciate you very much.