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Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Polymyalgia Rheumatica (PMR) | Last Active: May 21 8:50pm | Replies (107)
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@barb01001

I have have difficulty decreasing prednisone. As soon as I get below 10, my symptoms increase. I have tried Methotrexate and Leflunomide. The later has given me dizzy spells in the morning. My doc is now working on getting authorization for Actemra. I'm wondering what others have experienced. Thanks so much.

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Replies to "I have have difficulty decreasing prednisone. As soon as I get below 10, my symptoms increase...."
bill8491 | @bill8491 | Jul 18, 2022

I have been on Actemra for 7 weeks. I started Actemra with an accompanying dose of Prednisone at 30 mg. Which tapers each week. I had no pain with the prednisone (but the side effects of prednisone were brutal) so I was looking forward to the tapering of prednisone. I am now at 10 mg of Prednisone and a weekly Actemra injection. Unfortunately, I’m feeling some of the PMR pains again. I’ve read where many have had great success with Actemra, but I’m thinking I’m not one of them. I’m going to tough it out a few more days and if things don’t get better, I’ll be back to my rheumatologist.

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