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Small Fiber Neuropathy biopsy test results
Neuropathy | Last Active: Feb 15 2:46pm | Replies (36)Comment receiving replies
@rnlorena I’m sorry to hear about all that trouble you’ve had with getting quality care. You’re right, it makes a person not want to deal with their medical issues because of the trouble finding quality care. I’ve had symptoms of my -now known- conditions for ~25 years. I was often given the catch-all diagnoses and meds thrown my way, I’d end up quitting meds and moving on. The symptoms progressed enough over the last few+ years that I got more assertive about finding good care and answers.
Have you looked at the specialists at Jacksonville Mayo? Maybe research the doctors, read their bios and find one that could be a match for you, then call Mayo for an appointment. Let them know you checked your insurance and the provider you are calling to schedule with is covered. Also let them know you’re ok with being scheduled with the doctor they feel is best suited for you based on your medical records. From my experience, at that point they’ll tell you where to have your records faxed. Once you fax your records, give it about 7-10 days and call back to confirm receipt and make the appointment. In my case, they didn’t want to make the appointment until I sent my records.
I hope you find good, quality care that you deserve. Let me know how it goes.
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Robyn, Twenty five years is a long time to deal with medical issues. It can become tiring to people when they want to know things. The pill thing is something else. I have had trouble myself dealing with this idiopathic SNF. It's the not know that can hurt you. Too many people just go along with things and I am not that way. Not all Doctors are bad. I have seen some good ones. I am a firm believer that you have to question things but a lot of people don't. I have always advocated for the patient. I have had patients tell me their Drs are God. (I went crazy over that one). They are just people with a degree and they can make mistakes. I have told patients that if they are unhappy with their Dr. find another one. As I said before I love my cardiologist and she did right in giving me metoprolol for my heart rate and she also saved my husbands life. I want to question what else can I expect. Even though we have it I don't like the unknown. If I can be prepared I want to be. I want to see a cardiologist regarding my SNF and my heart. They also have neuro-opthalmologists at Mayo. I see one here and he is really good but I want to see one that may have seen more patients with SNF. The pin pricks in my eyes are scary to me and if I can I would like to know where I stand on that. As of yet I haven't met anybody that has had those. I also saw they generally put the private insurances out that the Dr. carries. I called my primary insurance and they said no problem with me going to Mayo. Thank you so much for your information on making appointments. I would like to see a neurologist at Mayo for a second opinion but I am not sure based on the fact that I am idiopathic and they have already tested me that I can get an appt. I am not giving up and I am gonna go for it. I will definitely let you know how it goes. I appreciate you very much.