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← Return to Severe pelvic pain 10+years after total hysterectomy
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Severe pelvic pain 10+years after total hysterectomy
Women's Health | Last Active: Nov 6, 2023 | Replies (15)Comment receiving replies
Where would it be located? Since I have this pain I am unable to work because the pain is so unbearable. This weekend was miserable I seen a obgyn and she said that she sees nothing wrong. I feel defeated and not sure what to do any more. I hate just laying in bed feels like I'm crippled I just want this pain to stop. My birthday was this week and I couldnt enjoy it like I used to. Is there a mayo here in Nebraska? I seen a specialist at the womans hospital in omaha her name was Dr. Naggy (not sure if I'm spelling it right) but she suggested I see a pelvic physical therapist so I did for a while and it never helped. I would love to get a different opinion see a new doctor to see if I can get help and answers
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It boggles my mind that all of these gynecologists you’ve been to aren’t taking this pain of yours seriously. Just a quick search on the internet chronicled case after case of women with continued endometriosis after a hysterectomy. From everything I’ve been reading you have all the classic symptoms and there are treatment options if this is what’s occurring with you. Your symptoms sure match.
Have you been offered any hormone replacement therapy or birth control pills? This can help regulate the hormones in your body to help reduce the formation of the endometrial tissue that’s causing the pain.
There’s also the possibility of using ultrasound, CT scans, MRIs or laparoscopic surgery to further check for endometrial tissue deposits. https://endometriosisnews.com/endometriosis-diagnosis/#:~:text=CT%20scans%20may%20be%20able%20to%20identify%20cysts,body%20and%20can%20identify%20cysts%20caused%20by%20endometriosis.
As I suggested before, it might really be helpful to see if you can get an appointment at Mayo Clinic with an Endometrial Specialist. There are no Mayo Network members in Nebraska so the nearest Mayo campus for you would be in Rochester, Minnesota.
This is the link to their home page. You’ll see a phone number for the Rochester clinic. Simply call that number and the coordinator will take your information to get the ball rolling.
http://mayocl.in/1mtmR63
This article really reflects the symptoms you’ve been describing.
https://www.verywellhealth.com/endometriosis-after-hysterectomy-5235482
I found 2 endometrial specialty clinics in Nebraska though it sounds as though you may have already sought care with the one in Omaha.
https://www.nebraskamed.com/womens-health/endometriosis
https://awhomaha.com/obgyn-services/endometriosis.php
I would be relentless in my pursuit to get this taken care of. This is agonizing for you and from what I found in my research it sounds as though it is fairly common and treatable. I mentioned hormone replacement. Was that ever offered to you? Did you have any further tests such as a CT scan or MRI?