← Return to Ibrance and Fulvestrant for Stage 4 MBC, Lung Fills w Fluid

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@pjsfla

Hello All, 5th cycle of Ibrance , also faslodex (fulvestrant ) shots / My R lung keeps filling w fluid , having the not fun drain procedure thoracentesis , at the hospital ,every week now , just to breathe . Searching for someone who has anything like this , as their reality ,and have found ZERO . I was told by oncol it's "Wait and See " situation, "see you in 3 mths" .… main side effects are huge fatigue, very short of breath ,some neutropenia , with a dose of pain and fear , to just exist 1 week at a time . PET seemed to indicate treatment is working against the stage 4 BC, but my week to week existence has me feeling it's useless postponement. So discouraging.

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Replies to "Hello All, 5th cycle of Ibrance , also faslodex (fulvestrant ) shots / My R lung..."

This sounds awful and I’m sorry you’re going through it. Have you thought of seeing a pulmonologist?
I was on Ibrance but it stopped working and am now on Afinitor. It seems like something has caused pulmonary fibrosis/ not a fluid issue but a hardening of the air sacks - can’t breath with the simplest tasks, hard to keep going. I told my onco I was going to see a pulmonologist. That type of fatigue is horrible. There’s a thread on this site you might find helpful. I’ll try and get it to you.

https://connect.mayoclinic.org/comment/723588/
I think this link will get you to the “fatigue” discussion