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Small Fiber Neuropathy biopsy test results

Neuropathy | Last Active: Feb 15 2:46pm | Replies (36)

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@rnlorena

Robyn, I would be looking at Jacksonville Mayo. I checked on my insurance and they would cover Mayo. I can go to any Dr. I want. I have been a little upset about Drs. When I first had the funny feeling in my chest I went to the place where I had been before for cardiac. I saw a new Dr. they hired. He sat in a chair and didn"t listen to a thing I said. He had on an Apple Watch and said that it would be good if I had one. I was ticked off to the max when I left there. I found out where my cardiac Dr. was and made an appt. Recently I had a few other things happen with Drs. It is not me. I recently left a Dr. that I really liked. Back in Dec. I was supposed to have a sixth month check up with her. I was looking forward to it because I had some issues. They called me and cancelled the appt the day before and said they weren't sure how long she was going to be out of office. We are talking months. I asked who I would see. They were very unprepared. I told her when I went that I was anemic last year and had to take Optiferrin-C well I had blood work and when I went on line to look at it I saw a lot of reds. I had to call them and ask what the problem was. I have never ever had to do that. Ever. I was upset. So I called them and wanted answers. I get a call back and they said well you are slightly anemic. Didn't say what I should do. I go to the visit and she says I should take the Optiferrin-C three times a week. I mentioned I wanted to go to Mayo and this is what she said. Well she didn't think it was a good idea because of the amount of money that it could take. I am extremely upset about that. I really want to find another Dr. but this time I will have to be more cautious. I had gone to another appt. and asked about my blood work and before I left I was told that the ARNP would have to speak with the Dr. and they would call me. After nearly a week went by I called them. Well we are sorry that we didn't call but we sent your information to one of my Drs and said I needed to call them. I have never had to do that ever. I called them and they never got the paperwork. The nurse made me an appt and I said I would print out my labs and bring them myself. It makes it hard for anyone who has issues to not just deal with the issues they have but that kind of stuff also. I will have a lot of questions about how they run their office for sure.

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Replies to "Robyn, I would be looking at Jacksonville Mayo. I checked on my insurance and they would..."

Robyn, Sorry for the running off of words. I tried to edit and they said it was too late. I think I might try your approach and see what happens. I really think it might be more important to try to see a cardiologist regarding the heart and maybe the eye thing. Although I am already seeing a neuro-opthalmologist. I thank you for your replies because it sets me thinking about options. I feel for others after reading their stories. It helps to share with other people because you might get something that will be helpful to you.

@rnlorena I’m sorry to hear about all that trouble you’ve had with getting quality care. You’re right, it makes a person not want to deal with their medical issues because of the trouble finding quality care. I’ve had symptoms of my -now known- conditions for ~25 years. I was often given the catch-all diagnoses and meds thrown my way, I’d end up quitting meds and moving on. The symptoms progressed enough over the last few+ years that I got more assertive about finding good care and answers.
Have you looked at the specialists at Jacksonville Mayo? Maybe research the doctors, read their bios and find one that could be a match for you, then call Mayo for an appointment. Let them know you checked your insurance and the provider you are calling to schedule with is covered. Also let them know you’re ok with being scheduled with the doctor they feel is best suited for you based on your medical records. From my experience, at that point they’ll tell you where to have your records faxed. Once you fax your records, give it about 7-10 days and call back to confirm receipt and make the appointment. In my case, they didn’t want to make the appointment until I sent my records.
I hope you find good, quality care that you deserve. Let me know how it goes.