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Small Fiber Neuropathy biopsy test results

Neuropathy | Last Active: Feb 15 2:46pm | Replies (36)

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@rnlorena

Hi Robyn, I appreciate your sharing very much. I know for sure I don't have POTS. I have had a lot of bloodwork to rule out autoimmune diseases and heavy metals, I also had a genetics test and nothing. I had no symptoms of anything. The tests were negative except for the skin biopsy. The all over pin pricks were it. I have had palpitations since I was younger and they were not a big deal until now. I remember the day well when I woke up and I had a funny feeling in my chest. I thought my it was my palpitations acting up in a weird way. No symptoms but the funny feeling. So I made an appt. for my cardiologist. I had Echo and Stress Test and those were normal. But the holter monitor showed lots of stuff. I had lots of PSVC's, PVC's, couplets, bigeminy, trigeminy. I would like to get an appt. to Mayo but I don't think they will take me. Question: How hard was it for you to get into Mayo? I called and asked about getting an appt. and they told me I have to have a referral from a Dr. but that doesn't guarantee me an appt. It is somewhat mysterious so I wonder what comes next. I don't like taking the metoprolol but if it keeps my heart rate good I am okay with it for now. Thank you so much for your response. Keep in touch with us here. I wish you well also.

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Replies to "Hi Robyn, I appreciate your sharing very much. I know for sure I don't have POTS...."

@rnlorena I had a lot of those cardiac tests you mention also. It was the tilt table/autonomics testing my neurologist did that diagnosed the POTS. All the cardiac testing just concluded “tachycardia”, basically. I hear from so many people that it’s extremely difficult for them to get into Mayo. It was very simple for me. I wonder if it has to do with insurance. I just called, shared with them that I was looking for a second opinion and requested a specific doctor (based on my online research of the providers at Mayo). One thing worth mentioning is that my insurance does not require a referral. I can choose my specialists, as long as they are in network, without a referral. Maybe insurance is the difference? Which Mayo would you look to get into? I live in Phoenix and am very lucky that they’re practically in my backyard.