RSO: This journey we are on has all kinds of challenges. We think we are making progress with one treatment and then things change. Patience is the name of the game. Nothing seems to come easy and just when it seems something is working, it stops working. The good news is there is another treatment waiting to be applied.

My journey started in January 2019 when a routine PSA showed 197. When I was first seen a month later it was 541. Immediately began treatment with bicalutimide. Biopsy confirmed cancer with Gleason of 10 in all samples.
PET scan with axumin confirmed metastatic cancer in spine, ribs and shoulder. Started Eligard (lupron) a month later (I get a shot every 6 months with minimal side effects) . PSA began to drop. Added zolodronic acid for bone strength. Added radiation treatments that summer and got PSA down to 2. It did not last. Changed from bicalutimide to enzalutimide. Again a decent decline in PSA but it didn't last. Dropped enzalutimide and started radium223 treatments. Got four of the six treatments.

PSA rose to about 1100. Did bone marrow biopsy. Confirmed cancer in the bone marrow. That has caused issues with blood counts, strength and stamina. Began docatxel with my final, sixth, dose coming this week. PSA is dropping with the latest reading at 28.

I relate all of this as an example of the ups and downs when treating this disease. It is a long difficult journey and each person's is different. Be patient, trust your medical team, remember there are new treatments coming all the time and new treatments in development. Do your best to stay positive. Stay active with activities you enjoy.

I hope this of some help to you.